Part Four: My Mother Moves to the Driver’s Seat

January 19, 2010

My mother was never a big fan of driving. It was just something she learned to do so she could get around in the world. When she remarried, 28 years ago, my step-father assumed most of the driving. He loved to drive and he loved his cars. Aside from the few times she was alone and drove to volunteer at the county hospital or go to a meeting, when they were together, he was the pilot and she was the navigator.

The less she drove, the less comfortable she was behind the wheel. When the inevitable health crisis happened and Dad could no longer drive safely, she moved to the driver’s seat. Even though their application for paratransit service was accepted, they would not schedule a ride. The taxi company was available, but they were reluctant to use it. For doctor’s appointments, they occasionally used the special “private driver”. If a friend offered a ride, they accepted, but it had to be life or death for them to ask a favor. After nearly 20 years of cheering me on as I worked to start ITN and ITNAmerica, they had no ITN to meet their needs. It reminded me of my many older friends who have helped us with our work in communities all over the United States, and are waiting so patiently to use the service themselves. Now it was happening to my parents.

My mother was doing the driving, and we all knew that was not a happy situation. She was OK as long as they only drove to places where she knew the way, like shopping, the library or the bank. But as my father’s health declined and the doctor’s visits increased to three or four times a week in distant locations, my mother’s driving anxiety escalated to the seriously uncomfortable zone. I suggested to her that when the winter weather arrived, she would need to use the alternative transportation plan. It simply was not safe.

That was when the back up plan moved up to the first position as our parents’ free choice. We had every single thing in place for them to stay in their home, but when they thought about living in the suburbs, without ITN and without the ability to drive a car safely, they decided to move. They found an independent living place they love, put their house on the market and sold it in one month. My mother organized the entire move. I once told her that if she had been born at another time, she would have been the CEO of a large corporation.

“Sweetheart,” she said, “I am happy I have lived at this time. Look what I have seen in my lifetime. I would not change it for anything.”

Every time I try to teach my mother something, she teaches me something else. My father still copy edits so well, he finds errors in newspapers, magazines and published books. The skills and qualities that make us whole and human and wonderful have nothing to do with driving. We can all move beyond it, and we can all learn grace from the older people in our lives who do it so well.

Part Three: Planning for the Transition from Driving

January 8, 2010

I’ve been working in senior transportation and specifically on the Independent Transportation Network for almost 20 years. My parents have helped and supported this work throughout that time. In the beginning, my Dad said things like “When are you going to get a real job,” and “Are they paying you yet?” After awhile, he was proud of the progress we made.

Still, when the time came for him to stop driving, there was no ITN in his community. Both of my parents grew up in New York City, so they grew up with public transportation. My mother did not even learn to drive until she was in her 50’s. My parents were living on Long Island, in what could easily be described as a transportation rich community. They had access to trains, busses, paratransit services, airports, private bus services, limousines and taxicabs. However, by the time they reached their later years, the only way they would travel was by automobile.

I spoke with our parents about the transportation services available to help them if they limited driving or had to stop driving. Fixed route busses were out of the question, since they could not walk to the bus stop and certainly could not carry packages. My mother identified the paratransit service for her community and sent away for the application, which she completed and returned. She phoned her friends who had stopped driving and asked them for the name and number of the “private driver” who took older people to doctor’s appointments. During one visit to my folks, on one of our daily exercise walks around the neighborhood, my mother pointed out the home of the local taxi driver she thought she could trust. She called his company and made arrangements to use their services when she needed them.

So, it seemed we had a plan. Alternative transportation, access to caregivers, names and numbers for doctors and hospitals, prescription drug information—everything we thought we needed to help two wonderful people live their lives exactly as they chose, where they chose, on their own terms. We even had a back up plan, an independent living facility near my sister, where they could move, God forbid, if they needed to leave the home they loved.

The plan was in place in the nick.

To be continued…

Part Two: Say “I love you” and be patient

January 5, 2010

When it was time to speak with our parents about the transition from driving, my sister, two brothers and I began the conversation with each other by email. We agreed that transportation was only one part of the services necessary for our parents to live as independently as they wished. We decided to divide the communication according to our abilities, and we worked by consensus over many months.

We agreed, in advance, that our goal and hope was to be a support for our parents as they grow older. To that end, we needed to learn their wishes so we could help them on their own terms. We had no preconceived ideas about what was best for them, and we love and respect them far too much to presume to know their needs and desires better than they. We did have clear ideas about safety, and we anticipated that we would need to stand firm and together on that part. We understood we would need to have many conversations over many months, and we agreed that some of us would have one conversation, and others would have another.

We distinctly opted to avoid an “encounter” situation. Maybe we would have done this eventually, if our parents had not been reasonable. But they were paragons of reason. I’m not saying this was easy for them. I don’t think it is easy for anybody. I’m saying that they were willing to have the conversations, and together, we had a successful dialog, instead of a confrontation. Our family experience really resonates with Liberty Mutual’s national survey, which found that an overwhelming majority of seniors are much more open to having a conversation about their driving than their children think. The survey found that 94 percent of seniors would not be embarrassed discussing the topic, and 80 percent said that such a conversation would not make them uncomfortable. Ninety-two percent of the seniors said their children “have a right” to raise the issue with them.

In our family, I started the conversation with my mother. I waited until we were together, and since we live several states apart, that took awhile. I spoke for all the adult children, and I said, “We love you. We want to be sure you and Dad have everything you need to live exactly as you choose. To support your wishes, we need to know more about your needs.”

My mother was half perplexed, and half ready to assure me that she was in control of everything and needed nothing. So I listened and said, “Well, what if the time comes when we need to help you? How will we know what you want?”

“I’ll tell you when the time comes,” she said.

In my family we always say, “God forbid,” before something bad that might happen.

I said, “God forbid, you have a stroke and cannot speak. How will we know what you want or need?”

“I see,” she said.

“I’m assuming you want to stay here, in your own home,” I said.

“Yes, of course,” she said. “Moving out of this house is out of the question.”

“OK, I said, “then that is what we want for you. How do we help you to do that?”

That is as far as we got in that conversation, but it was enough to get started.

Soon, other siblings had conversations with Mom, and she in turn, had many conversations with Dad. Our talks continued for half a year, slowly, lovingly, gently, steadily, respectfully. My brother in the insurance business talked with them about how they might activate their long term care policy, when the time comes, and how they might choose a personal care assistant. My sister, a healthcare professional, asked them for a list of their doctors, with contact information, and about medications they need. My step-brother, an experienced business man and a good negotiator, volunteered to have the conversation about driving with our Dad, who is actually my step-father. He waited for a time when our parents were visiting his home, when he could be alone with his father.

When he emailed us that they had a good conversation, we were all surprised and happy. This was the conversation we were all dreading. My step-brother reported that our father said his driving was just fine. My step-brother did not argue with him but asked Dad if he would agree that he would not be driving forever, and that driving until he crashed was not an option. Dad agreed. My brother asked him if he thought he would need to stop within the next 5 years. (He would be 98 then.) Dad agreed that was likely. Then, my brother concluded, we needed a plan for when that day arrived.

My part of the conversation was senior transportation, and we worked on it, as I hoped we would, while they were both still driving.

To be continued…

My Parents Transition to the Passenger Seat

December 31, 2009

Part One: Older Drivers: A Family Affair

My parents have given me permission to tell their story—this story. The transition from driving is a family affair. I dedicate this story to their good hearts, to my family, and to the millions of families across the nation who will gather for the holidays and struggle with this hidden problem. How do older people make the transition from the driver’s seat to the passenger seat with dignity and independence?

I began talking to my sister and brothers about our parents’ situation a few months before Liberty Mutual asked me to write about the transition from driving for their website. At first, I only wanted to write about statistically significant research results, but they encouraged me to write from my 20 years of experience with older drivers and their families and what I knew to be the core issues. There is a time for science, and a time for heart and instinct, and I think that in the best leaps in understanding they just blend together.

What the good folks at Liberty Mutual did not know is that I was writing from my own life events, as well as my professional experience, and that I have actually taken my own advice. I think they call this “taking a dose of your own medicine.”

Like many families, ours is spread over several states, so the conversation began by email among the adult children. I got things started by writing to everyone saying that I thought we needed to talk about how to support our parents’ wishes before there was a health crisis or an emergency. At the time, my mother was 84, my dad 93, and they were living independently in their own home. Both were driving, and I knew we were on thin ice. Better to aim for the shore before it cracks, I thought. It was only a matter of time.

To be continued…

Possible Next Chapters:
Part Two: Say “I love you” and be patient
Part Three: Moving Forward Again, Safely

ITNGreaterCincinnati

December 23, 2009

ITNGreaterCincinnati™ is doing everything right.  I’ve just returned from the Vital Signs Forum, sponsored by the Deaconess Associations Foundation, one of the key community stakeholders collaborating to bring ITN to the Cincinnati Metropolitan area.

I first met Pat Ward and Barbara Lohr of the Deaconess Associations Foundation, Amy Scrivner of the Cincinnati Eye Institute Foundation, Robin Usalis of Clovernook Center for the Blind and Visually Impaired, and John Mitchell of the Cincinnati Association for the Blind & Visually Impaired last June in Lexington, Kentucky, when I was there to speak at the University of Kentucky Summer Series on Aging.  While I was “in the neighborhood” Gale Reece and Laura Dake of ITNBluegrass™ offered to host an introductory meeting for the group from Cincinnati, who were looking for a transportation solution for seniors and people with visual impairments.

It is a wonder how fast ideas can turn into solutions when people are ready to act.  In less than six months, ITNGreaterCincinnati was launched, with plans to have rides for people by spring of 2010.  It’s a combination of action-oriented citizens and a system that supports them with everything they need so they don’t reinvent the wheel.

Pat is a man with great charm and warmth—a real “people person” as one of his colleagues described him.  He made sure I had fun in Cincinnati, touring me all over to see the architecture and the parks, as well as the Taft Museum and a play that was a fundraiser for his beautiful parks.  He is a man who loves his city, so it made me feel very proud that it is ITN he wants to bring to town to serve people with special transportation needs. But the fun was so mixed with the work I felt I was on vacation as much as a business trip.

Pat and I also met with representatives from some of the many corporations headquartered in Cincinnati and spoke with them about the importance of sustainable transportation for the entire community.  In the spirit of community collaboration and grassroots support, with leadership from a man named Pat, ITNGreaterCincinnati™ is off and running.

ITN and Senior Transportation on NPR

December 1, 2009

It was a real pleasure listening to Thaddeus Seymour on NPR last week as he described what transportation means for older people who have stopped driving.  Thaddeus is the retired President of Rollins College, but he is also a volunteer driver and a member of the Board of Directors of ITNOrlando™.  The last time I heard Thad speak was in a church meeting room in Orlando at a special volunteer driver recruitment event sponsored by the AARP Florida State Office, ITNAmerica and ITNOrlando.

He is a tall man, more than six feet.  I had never heard him speak before a group.  He wasn’t scheduled to speak, but he rose from his seat after the presentation on volunteer driving, and spoke from his heart and experience.

“I remember meeting in the basement of this very church in the 1970s,” he said.  “We were a small group of local people who came together to try to do something about housing for lower income community members.”

He spoke with the clarity of one who sees his memory as he describes it for others.  “It was a new idea at the time,” he said, “called Habitat for Humanity.”

He said what he really liked about the Habitat idea was that the people in the community could actually come together and do something about the problem.  They could do it themselves, not ask others to do it for them, but raise the funds and build the houses themselves.

Thaddeus said he felt the same quality and satisfaction with ITN.  He loved volunteering to drive others.  With every ride he delivered, he helped to meet a need for an older person.  And just as he explained in the NPR story, he described how ITN is much more than a ride, how it keeps older people connected to their community, with dignity and independence.

NPR also covered ITNAmerica on Morning Addition in January of 2009.

Senior Transportation Annual Retreat

November 23, 2009

Part of our vision for ITNAmerica as a national solution to the need for senior transportation was an annual retreat. We wanted there to be a time and place for ITN Affiliate Communities to share what they have learned. On October 22 and 23, that is exactly what we did. From Los Angeles and San Diego to Orlando and Sarasota, with Lexington, Las Vegas, Cincinnati, and Charleston in between, we came together as one senior transportation family here in Maine, in our old brick mill on the river, to learn and think together about the people we serve — older drivers, caregivers, healthcare providers, adult children, and most of all, older people who need door-through-door and arm-through-arm transportation.

Every ITN Affiliate Community has the same shared mission: To provide a community-based, community supported, economically viable and consumer-oriented, quality transportation service for seniors and adults with visual impairment.

But there are so many ways this can be done. What makes an ITN — Independent Transportation Network — affiliate community so special? I think it’s all in the mission:

Community-based and community supported — this means that every ITN is an independent, charitable, non-profit corporation with its own local Board of Directors, supported locally with volunteer drivers, charitable donations, car donations and CarTrade™, and shared annual community outreach events, like the Walk for Rides™.

Economically viable — this means that economic sustainability derives from reasonable fares from the people who use the service and a diversified base of local, community support. ITN Affiliate Communities may use public resources for up to 50% of their start up funds in the first 5 years, but after that, they do not use public funds for operating expenses. ITN supplements publicly funded service; it does not compete with it or replace it. We’re partners with public transit, not competitors.

Consumer-oriented, quality transportation service — ITN is always, entirely about the people we serve. That is why ITN is available 24 hours a day, 7 days a week, for any purpose, without restriction. We use automobiles exclusively, and a combination of paid and volunteer drivers so we can provide service whenever an ITN member needs a ride. It is the service older people need and want.

At the retreat, we talked about our corporate partners, like Liberty Mutual, about the portal we use to share tools, like the Executive Dashboard, the Wiki and the Forum, about 5 year budgets, volunteer recruitment, and of course our Max and Helen Israelite Volunteer of the Year Awards.

We’d love you to join us. If you’d like more information about how to start an ITN Affiliate in your community, please email info@ITNAmerica.org. We will be happy to answer your questions.

Some Car Thief

November 18, 2009

When it comes to older drivers, it is much harder for men than for women to let go of the keys. I have seen baby boys in diapers run across the room and hit the couch by the window at full tilt, just to scramble up into the window in time to see the garbage truck because trucks are so exciting. What is this romance that men have with transportation?

Michelle Huneven’s article in the New York Times is her painfully funny account of her own father’s long and difficult journey from the driver’s seat to the passenger seat. It seems a miracle that he did not seriously harm himself or others in the process.

By her own account, Ms. Huneven’s father experienced dementia, and that may be a large part of the problem. People with dementia not only have an impaired ability to drive safely, they have an impaired ability to know they have an impaired ability. In the end, someone needs to act responsibly for older drivers with dementia who lose their way, literally and figuratively. We need to thank all of the Michelle Hunevens out there who are making these difficult choices. Most of all, we need to help them.

That is exactly what Liberty Mutual is trying to do, in many ways. First, they built a website to help adult children have this difficult conversation with their parents. Then, they developed an online game to help younger people experience what it is like to be an older driver. Finally, they developed a special suit, to help younger people experience what it is like to feel older. It’s a responsible approach that isn’t always easy to accept, but it is absolutely necessary and it will save lives.

It will also provide help for all of the Michelle Hunevans, so we do not have to struggle alone.